ELFY awarded ORCHA’s quality mark badge

We’re delighted to announce that ELFy has been awarded ORCHA’S quality badge mark. The badge was created to help health professionals and users identify apps that exceed ORCHA’s 65% quality threshold. ORCHA is the world’s leading health app evaluation and adviser organisation, working with the NHS and other health bodies. 

ELFy has been rated by ORCHA as the No.1 app for bipolar. It is also rated no.3 for Epilepsy, and features on ORCHA’S leading page for both medication reminders and ADHD.

 ELFy was founded in order to help support the estimated 15 million people in the UK taking regular medication for long-term conditions, and help ease the burden on the NHS. 

 ELFy contains three key long-term conditions in one single iOS or Android app. It provides a vital medications reminders system, plus:

o  prevention and emergencies Action Plan for each condition

o  key information section for your condition/s

o  links to valuable support sites

 ELFy is free. It is a simple, friendly and intuitive piece of technology that anyone can use, right across the social spectrum, and designed to make a real difference to their lives.

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ELFy founder's book on Addison's Disease commended in BMA awards

The Addison’s Disease Self Help Group has received a Commendation at the British Medical Association Patient Information Awards 2019 for ‘Living With Addison’s Disease’, written by Professor Simon Pearce and ELFy founder Sarah Spain. Addison’s Disease - chronic adrenal insufficiency - requires daily medication and affects around 8,000 people in the UK .

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A must read for anyone who needs to know about Addison’s Disease


https://www.amazon.co.uk/Living-Addisons-Disease-Supporters-Professionals/dp/1527236641/ref=asc_df_1527236641/?tag=googshopuk-21&linkCode=df0&hvadid=310973726618&hvpos=1o1&hvnetw=g&hvrand=18280352119137160377&hvpone=&hvptwo=&hvqmt=&hvdev=c&hvdvcmdl=&hvlocint=&hvlocphy=1006909&hvtargid=aud-543776533562:pla-668106977718&psc=1&th=1&psc=1

Harnessing technology for good

Technology for good. Technology with a human face. ELFy shares DNA with Homeis. 

Pioneer Of Humanability: Ran Harnevo

In an interview with PSFK, working in collaboration with Verizon, Ran Harnevo discusses how he is using technology for good with his work for Homeis.

In a special series brought to you with the help of PSFK's partner Verizon,The Pioneers of Humanability is directing the spotlight onto the people, organizations, and companies who are using technology to do more new and do more good in the world.

Living abroad can feel like having two homes. It can be a challenge to embrace the place where you live while also honoring the place where you came from. Ran Harnevo, Founder and CEO of Homeis and one of the Pioneers of Humanability, is using technology to create a digital community where foreign-born people can connect with other locals who share the same homeland. In this interview, Ran describes how Homeis lets people connect with nearby friends to celebrate their culture and discover their new cities.

PSFK: How does the work that you do strengthen or positively impact communities?

Ran Harnevo:  Basically, what I think we’re trying to do is to help immigrant communities that are pretty below the radar. We want to help what we call “unvisible” groups to become visible communities. In most cities in the world, there’s a lot of local immigrant communities that are strong, help each other, support each other, help the integration into the society in the best way possible. That’s our focus. We’re helping these communities.

PSFK: What inspired or motivated you to do more new and do more good?

Ran:  I came here 10 years ago with my first startup, a video startup that got acquired by AOL for $65 million. I lived here for 10 years. I look at myself as a privileged immigrant. Still, I think that there are so many difficulties and shared experiences that communities have. I just saw my own community, which is the Israelis in New York, and many other communities of friends. After being successful with my first startup, it was super important to me, when creating a second one, to do something that is meaningful. I want to help my people, and when I say “my people,” it’s foreign-born people. I feel I understand them profoundly well.

PSFK: You talk about culture networks. What sets Homeis apart from other apps or networks that connect local people?

Ran:  We are not connecting local people. We are connecting the local people that share the same culture they bring from home. It’s very different. We’re not gathering around a neighborhood or around an interest. When you move to a new country, you first of all want to assimilate, and you want to give back. You want to find what’s in common between you and your place. But you also, in our day and age, are not going to delete your past in order to integrate. I think that’s over.

When we say culture, there’s a lot of shared context behind me and another Israeli. We grew up in the same education system, around the same TV shows, the same books and the same culture that we want our kids to have as well. I actually think that there is no second Homeis out there, trying to connect people that literally grew up in the same culture, and want to preserve it one shape or form.

PSFK: What user needs or behaviors drove the particular features of Homeis?

Ran:  I think that what we are trying to do is organize information through our social activities—meaning that when you look at foreign-born people, what they really do offline all the time is recommend. It’s really a network of recommendation and trust. “This is the lawyer you should work with. I worked with him. He understands us. He understands our mentality. He speaks our language,” etc., etc. In a way, I think that these communities and their ability to consume knowledge in an organized way is extremely difficult today.

As much as digital is flourishing, we are still seeing people calling each other to get a recommendation. The crowd wisdom or the crowdsourcing has never existed before. I think that drove the products. The product is about helping together and sharing useful information that would improve their day-to-day life in a place people are not totally familiar with.

PSFK: What are some of the surprising or inspirational stories members have shared about their experience?

Ran:  First of all, I feel that people feel comfortable. There is something about being foreign born where saying, “I miss home. I miss this, I miss that,” is not something you can share on a Facebook page. It’s just a very personal experience. On Homeis, people are literally sharing a lot of their journey, and a lot of their difficulties. They feel that it’s a shared experience in the context of the product. That’s one rich thing.

The second one I would say is there is a lot of small businesses that are only directed towards a certain group. If I’m an immigration lawyer, and I speak Hebrew, most of my customers are Israelis. If I’m a gynecologist and I speak Portuguese, most of my customers will be Brazilians. Today, these guys have no way to let the world know that they exist. What was surprising for us was how many of them joined us to be able to tell their story about a small business they’ve built. It’s business, but it’s very inspiring. We can actually help extremely small businesses that are not even indexed in Google to be able to talk to their audience in a very effective way.

PSFK: What are the unmet needs you’re trying to address?

Ran:  I think it’s very simple. We want to be the go-to product for every foreign-born person around the world. If you are not one of them, you don’t understand how deep and personal their needs are. The use case here is very clear to us.

We have a group of people who have done a brave thing. They left their comfort zone. They live in a new place, with new rules, with new systems. Their needs are pretty obvious, it’s just that no one has ever created a product for that.

PSFK: How do you see Homeis evolving in the future?

Ran:  We’re only in New York right now with two communities, Israelis and French. We will grow both of them globally in the next year. It will be open to more French communities and more Israeli communities.

Then, we just want to take one country at a time, and adapt the product to the language, hire the right people and just go at it. Indians, Mexicans, Koreans, everybody. The idea, again, is to be the main place where foreign-born people are going to.

GSTTC publishes new report on multi-morbidity

The latest research from Guy's and St Thomas's Charity (GSTTC) highlights the significant challenges posed by multiple long term conditions. The study emphasises the importance of addressing not just the growing prevalence of multi-morbidity that now affects more than 3 million people in the UK, but in particular, the inter-relationship between mental and physical health.

Thanks to the team at Inspire in Tower Hamlets, which has helped produce content, progress is now well underway on the ELFy Mental Health variant. Next steps will be the design of an app that accommodates multi-morbidity.

https://www.gsttcharity.org.uk/what-we-do/our-programmes/multiple-long-term-conditions/one-many-exploring-peoples-progression

 

New report highlights the importance of high quality patient information

ELFy welcomes today's launch of the 'Perfect Patient Information Journey' - a report published by the Patient Information Forum (PIF). This represents the culmination of a comprehensive project which aimed to move beyond encouraging rhetoric towards real progress, by creating a model of what successful access to information looks like in practice and testing this out in a clinical setting.

The report identifies 7 key steps for health services to improve information for the 15m+ people with long term conditions.  As Sue Farrington, Chair of the PIF, comments in the Foreword to the report:  "Ensuring people are well informed about their health condition, their treatments
and choices, and what they can do to stay healthy is of huge benefit to patients, improves outcomes and helps to relieve pressure on the health service.1 These are all points endorsed in the recent NICE ‘Shared Decision-Making Collaborative, A Consensus Statement’.

https://www.pifonline.org.uk

 

ELFy announces plans for a mental health variant

 

ELFy welcomes Mental Health Awareness Week with the announcement that we’re working on a version of ELFy for people taking medication for depression and anxiety. In collaboration with the mental health consortium, Inspire, this will be a key addition to the ELFy family. Conditions like asthma and epilepsy often accompany depression and anxiety - and vice versa. That’s why simple, friendly support of each of these conditions goes hand in hand with better outcomes all round.

https://www.mentalhealth.org.uk

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ELFy is collaborating with a task group put together by Inspire to produce content for a new variant for people taking anti-depressant medication. Inspire is a mental health consortium delivering new, inspiring and innovative services across Tower Hamlets that promote good public health and positive wellbeing.

The development of the third app in the ELFy family will be funded by the second award from Tower Hamlets Together.

 

Further funding awarded to ELFy by London's Tower Hamlets

Following a successful trial of ELFy Asthma and ELFy Epilepsy in London's Tower Hamlets, we have been awarded more funding by Tower Hamlets Together Staff Innovation Fund to continue our work in the borough, including the development of one or two new variants.

A local GP and member of the evaluation panel commented: 'ELFy was always one of the strongest (of the staff innovation projects). I was particularly impressed by the ease of use of the app. Also it is key that we support patients to manage their own health and this is what the app is designed to do. The pilot evaluation showed good results in terms of feeling healthier. I was also impressed to see that farther down the line people continued to use it, which I consider a very good sign. Finally I know from the pilot scheme that the app improved engagement with BAME women which is fantastic. I can see future apps working with different conditions being an important part of health care.'

Michael Keating, THT PMO, added: 'The person-centred approach of the Tower Hamlets Together Vanguard was embedded in our design principles.  This was why we supported the use of the ELFy app as an innovative way of meeting local needs, particularly of BAME women, and helping tackle health inequality.'  

The NHS. Why £4bn a year isn't enough.

Headlines are telling us that the Prime Minister is considering a 70th anniversary 'present' of £4bn to the National Health Service - and some commentators are suggesting that this figure is excessive. It's certainly ridiculous. Ridiculously inadequate. As long ago as 2012 a House of Commons Select Committee revealed that the annual NHS budget for one long-term condition alone - diabetes - costs Britain £11bn a year. In other words, £4bn represents around a third of today's NHS costs on just one disease. Simon Stevens, the Head of NHS England, is right to suggest that an injection of £20-£30bn a year is closer. If we seriously want to transform the NHS into a fit-for-purpose, world-class health system in the 21st century, as a nation we have to change our thinking. It starts with accepting reality and understanding the actual sums involved. And leads to an acceptance that all of us may have to pay far more to get the service we demand.

https://www.theguardian.com/society/2017/nov/08/nhs-chief-warns-waiting-lists-could-hit-5m-without-extra-cash  

Why everyone with asthma should have an Action Plan

The National Institute of Health Research has highlighted the results of a major study showing that supported self-management can significantly reduce unscheduled use of healthcare services among asthma patients: https://bmcmedicine.biomedcentral.com/articles/10.1186/s12916-017-0823-7

The study points out that the value of a personalized asthma action plan (PAAP) is incontrovertible (Patients are 4 times less likely to be hospitalised with an asthma attack if they have been issued with an action plan (Asthma UK). Yet only a small proportion of patients are actually issued with one.

Right across the social spectrum, taking medication every day is never as simple as it sounds. This is a huge problem that is largely overlooked; yet solutions such as providing action plans to all asthma patients needn’t be complicated or expensive.

ELFy is an alerts-plus app supporting people with long-term conditions. Every ELFy variant has a user-friendly Action Plan.

 

ELFy and long term conditions. Aiming at the iceberg, not just the tip.

Long term conditions affect around 15 million people in Britain, plus an estimated additional 15 million people who love and care for them. Day to day self-management is never as easy as it sounds. Which is why so many preventable complications – and emergencies – arise. Aside from the human cost, the effect on health service costs is, of course, simply huge.

We talk about ‘health literacy’ and the ‘expert patient’ - and most approaches to supported self-management pre-suppose this kind of learning curve is suitable for everyone. But in the real-world only a minority of the patient population has the resources, and the inclination, to amass a body of information and then convert that into action with their own condition.

ELFy recognizes this by addressing what is really needed for the vast majority - a simple, practical, commonsense tool that’s friendly, supportive and non-clinical, and which, crucially, requires minimum input by the user.

ELFy’s starting point is that we can only help transform lives if we truly understand those lives. ELFy has been designed to appeal to everyone, regardless of age, education, ethnicity, location and social class. And by doing so help support not tens of thousands, but millions.

 

Can we look forward to a better health service from tomorrow morning?

Whichever political party (or combination) is in charge of UK citizens' health for the next 5 years, there are some very large, and very fundamental questions they - and Britain - need to address. All parties are, of course, pledging that the NHS is a priority. One party has promised an injection of funds with a specific figure attached to it: £6bn a year. While this would of course be a good thing, there are two problems with this or anything similar.

One is the figure itself. To put it into context, £6bn represents slightly more than the NHS currently spends on one condition (diabetes) alone. In other words it's a token and little more. If it happens it will, unfortunately, barely be noticed. If we want to make a real difference with money alone, we need to be thinking of sums very much larger than £6bn. And that means a conversation on all sorts of uncomfortable topics, ranging perhaps from very much higher levels of taxation to the potential greater involvement of the private sector, for example, in Britain's health system.

The second problem is the idea that money and resources are the only issue. One of the biggest problems for the NHS is its very own systems and functions, its practices and culture, and its ability to communicate efficiently, even with itself. These are all problematic in the NHS, the result is a great deal of money wasted, and these have to be addressed by better management as well as better resources. The responsibility for these structural issues lies at the door of successive governments. NHS managers can only do what governments make it possible for them to do, in the form of resources, direction and leadership. 

So perhaps tomorrow morning we can look ahead to 5 years during which we begin at last to tone down our national practice of venerating our health service at the cost of repairing it. And instead think how a service designed for the 1950's can become world class before its centenary comes along. It will take real leadership and vision from government. And it will mean everyone who believes in a health system that's affordable, available to all, and of the highest quality, accepting that the world has changed since 1948. 

Simon Carbery, co-founder ELFy 

ELFy strikes a chord with Tower Hamlets population in latest trial

Research conducted for us by a locally based Community Research team has yielded some remarkable findings. The team at account3, a women's led worker's co-op in Bethnal Green, recruited a sample of 40 people with asthma and epilepsy to trial the apps over a four week period, gathering evidence of perceived control, adherence to medication and quality of life both before and after using ELFy. Not only did participants report that the reminders made a real and valuable difference by ensuring better adherence, but the asthma sufferers reported less shortness of breath and improved sleeping patterns - even over the brief four week period. Their responses also echoed those from the participants in the St Paul's Way pilot. They liked its user-friendly appealing design and welcomed not just the reminders and alerts, but the accessible, condition-specific information. Here's what some of them had to say:

'I am feeling better since using the app...no way I forget to take my treatment...I used to forget all the time'

'It is definitely useful for (my son (15)), he can look at the action plan and not panic or decide to call Mum'

'My kids are more involved in my management since I have been using the app. My girl is now my back up. I really love the app. Thank you...it is a life saver

'ELFy is my best friend'

'This app helped my wife to be more relaxed and less worried about me'.

Our thanks go to account3, the Community Research team and all who agreed to take part in this study, as well as Tower Hamlets Together for funding the project as well as enabling the production of ELFy Epilepsy.

account3 is voluntarily following up all the participants again at the end of 12 weeks, to establish whether they are continuing to use - and benefit from - ELFy.

 

 

ELFy completes St Paul's Way product trial

A big thank you to everyone who participated in the ELFy Asthma app trial, including Dr Joe Hall, Mr Atul Patel and their teams at the medical centre and the pharmacy.

Your responses were very positive. Nearly all of you would recommend ELFy to a friend and you found it easy and simple to use. You also liked the colourful design.

We are particularly pleased that so many people found the asthma action plan useful, even if they felt their asthma was well controlled.

A large-scale trial is now being planned and we are working on versions of the app for diabetes and epilepsy.

ELFy Asthma app in Tower Hamlets product test

App brand ELFy has announced that the St Paul’s Way community in London’s Tower Hamlets is hosting product testing for its inaugural Asthma version on the IOS (Apple) platform in August 2015. Volunteers with asthma are testing the app, with their questionnaire responses enabling final improvements and any technical bug fixes before a full launch campaign.

The St Paul’s Way community comprises the St Paul’s Way Trust School, whose patrons include Professor Brian Cox and ELFy partner Professor John Wass; the Lincoln and Bonamy Pharmacies led by Mr Atul Patel; and St Paul’s Way Medical Centre (ranked ‘outstanding’ by the Care Quality Commission), led by Dr Joe Hall.

‘Building an app brand designed to help the millions of people in the UK with long term conditions is essentially a large-scale community project’, commented ELFy partner Sarah Spain. ‘So it makes perfect sense to have a real Inner London community contributing at its outset. We’re enormously grateful to them, and to the Andrew Mawson Partnership, for helping us in our ambition to make ELFy the very best it can be - and make a real difference to ordinary people’s everyday health.’

Designed and developed by George Shapter and Joe Robertson at QIP Creative, ELFy Asthma will be joined by other versions aimed at long-term conditions in both IOS and Android forms throughout 2015/16.

About ELFy

Avoidable complications and deaths among Britain’s growing population of people with long-term conditions is overwhelmingly the result of people forgetting to take their medication correctly.

ELFy confronts this issue head-on with a family of apps combining an easy to use alerts system alongside your medical profile; a problem-prevention and emergency response section; easily accessible information on your condition; and key pop-up alerts.

Designed to appeal to all sectors of the population, ELFy is a friendly tool that combines the essentials for managing long-term conditions successfully, lowering both adverse clinical outcomes, costs to health services budgets and resources, and millions of days lost to industry.

ELFy was created by Professor John Wass, Sarah Spain and Simon Carbery

Contact: sarahjkspain@gmail.com, john.wass@nhs.net, scarbery@mac.com                                                                       

 Long term conditions. Key facts: 

·      1 in 4 UK citizens (15+ million) has a long term condition

source: The King’s Fund

·      Diabetes costs the NHS £14bn a year - 10% of total NHS budget. 80% of that expenditure is spent treating preventable complications source: House of Committee Select Committee

·      Nearly a third of all working time lost to employee absence is attributable to long term conditions source: CBI

·      Cost of absenteeism from diabetes is £8.4 bn per year source: diabetes.co.uk

·      Around 5.4 million people have asthma source Asthma UK

·      Emergency asthma admissions cost the NHS £61 million a year. 75% of admissions are preventable source: Right Care Atlas Of Variation

·      A child is admitted to hospital with an asthma attack every 18 minutes source Asthma UK